1. image: Download

    mulberryroad:

 Help for 410,000 disabled Australians | Herald Sun
This is one of the best NDIS photos I’ve seen yet.

And these are tough times, and it needs reblogging. 

    mulberryroad:

     Help for 410,000 disabled Australians | Herald Sun

    This is one of the best NDIS photos I’ve seen yet.

    And these are tough times, and it needs reblogging. 

     
  2. Yesterday was a very exciting day, despite all the other nonsense going on. Stella Young, the editor of ABC’s disability website, Ramp Up, is interviewed on her hopes for the National Disability Insurance Scheme, the legislation for which was introduced into Federal Parliament.

    Support the campaign here. We still have a way to go…

     
  3. So glad I logged into Twitter last week and found this brilliant article by Wendy Harmer at The Hoopla.

    It’s not only people with a disability who should be cheering the budget’s $1 billion commitment to a National Disability Insurance Scheme.

    Every one of us should be applauding like mad.

    Because perhaps, finally, Australians are beginning to understand in a profound way that disability is a part of life.

    That people with disabilities are not the invisible “other”. They are us.

    Yes, LET’S BUILD THIS BABY.

     
  4.  
  5. image: Download

    Rally to Make It Real 
As the poster says (the URL provides more detail if this is not so readable), this Monday, April 30, at 12 noon in all state capitals. They will all be memorable occasions.
This has been such an exciting year, I’ve had my heart in my mouth for most of it. The fragmented demographic to which I and my family belong, which has been voiceless through division for too long, is building universal support across the country, including bipartisan support amongst all elected representatives for much needed reform of a disability sector that is teetering on collapse.
If you’re in town that day, consider popping along, and/or signing up to support the campaign on the website. it’s going to be a great day.

    Rally to Make It Real 

    As the poster says (the URL provides more detail if this is not so readable), this Monday, April 30, at 12 noon in all state capitals. They will all be memorable occasions.

    This has been such an exciting year, I’ve had my heart in my mouth for most of it. The fragmented demographic to which I and my family belong, which has been voiceless through division for too long, is building universal support across the country, including bipartisan support amongst all elected representatives for much needed reform of a disability sector that is teetering on collapse.

    If you’re in town that day, consider popping along, and/or signing up to support the campaign on the website. it’s going to be a great day.

     
  6.  
  7. …Mr Abbott showed what he didn’t know about the National Disability Insurance Scheme when he said it’s $6 billion and we’ve got to get back in surplus.

    If he’d read the Productivity Commission report, and to be fair he may well have – it was a long report and he might have missed this table. The Productivity Commission proposed setting up a series of layers – so this figure of $6 billion, as posited by the Productivity Commission, is a figure which arrives in 2018.

    This idea that this nation is too poor and it’s too hard to find a solution is a copout, and I think there’ll be a lot of people with disabilities and their carers who’ll be contacting the Libs, and I wouldn’t be surprised if we see a policy backflip from the Liberals in the course of the next 12 months. Because when they get out back to their electorates after saying how wonderful Mr Abbott’s negativity is, there’ll be a lot of people with disability and carers saying hang on, the Labor side, they’re saying they’ve got a plan, they’ve got stages – they’re going to do it. The Liberal side are saying well maybe we’ll have a look at it depending on whatever else.

    People with disability have had enough weasel words for decades.

    — 

    Bill Shorten on Tony Abbott’s Press Club Speech,

    At the NDIS campaign website, everyaustraliancounts.com.au.

     
  8. The thing is, Mr Abbott, fixing the broken disability system we have in this country isn’t like saving all your pocket money until you could finally afford that CD player you desperately wanted when you were 12. It’s not a luxury item that we can simply do without until there’s some spare cash floating around. What you said yesterday made it very clear that you see improving the living conditions of people with disabilities and our families as an indulgence.

    This is beyond alarming. Whether or not we have the money, this can’t wait. The seven-year timeline outlined by the Gillard Government is already far too long for many people with disabilities and our families. If you were really interested the quality of our lives (and our votes) as citizens, your speech would have been a commitment to making this happen sooner.

    “As far as I’m concerned, there should never be first and second-class Australians based on where they were born, how they worship, or the length of time their forbears have been here,” you said. But your relegation of the NDIS to the if-we-have-the-spare-cash basket would rather suggest that you find the idea of a second-class based on whether or not you were born with a disability to be perfectly acceptable.

    I don’t.

    Are you hoping to delay fixing the system for long enough that we’ll all just go away and forget about it? We’re not going to.

    — 

    Disability funding is no indulgence, Mr Abbott - The Drum (Australian Broadcasting Corporation)

    What a ghastly individual he is. Let’s hope the rest of the party has a conscience and a connection to the rest of the community. We will not go away, Tony A.

     
  9. 100,000 supporters…and counting! « everyaustraliancounts.com.au

    A very good year - much more work to come in 2012. Thanks to Wendy Harmer for her support.

     
  10. “I had finally stopped hoping for a miracle”

    This heart-rending article appeared in the November 25-26 Weekend Australian Magazine. Regrettably it is now behind a paywall - I had a fulltext copy emailed to me courtesy of my public library’s subscription to Australia and New Zealand News Stand.

    I was away, taking a much-needed break myself, when this article appeared about the relinquishment of an 8 year old boy, Sam, to the State in Queensland by his mother, who could no longer care for him on her own.

    I only found out it had been published when letters appeared in this weekend’s magazine. I’m publishing a large chunk of it here and I will contact The Australian to ask them to put it all online again. But you can find it yourself quite easily from a State or local library website.

    I have not known many days as awful as the one on which I gave up my eight-year-old son Sam. His departure itself had been uneventful. To an outsider it might have seemed that a run-of-the-mill Saturday morning outing was about to take place. I had strapped him into the back of the four-wheel-drive, kissed him as many times as he would allow and held my daughter’s hand as the vehicle reversed down our driveway. The driver returned our waves with a cheery toot of the horn but my little boy sat expressionless, looking straight ahead. There was nothing unusual in that either. His could be a hard eye to catch.

    Depending on what perspective one chose to take, it could have been considered the beginning or the end of my life. It was the end of purgatory but the next destination did not feel like either heaven or hell. Rather, another in-between place, a post-cyclonic wasteland - or even the real world. That was a place I had not lived since 2004. It was certainly the end of my longing for a miracle. I had finally stopped hoping that my child would be restored from the mysterious neuro-psychiatric disorder that had swept tsunami-like into his life in the four months prior to his third birthday. This mysterious condition had robbed him of his ability to speak, to move freely, to do almost anything that boys like to do.

    What I find toughest to deal with is this woman’s continuing psychological suffering since her son being taken into care. Her struggle to return to normal life involves crucifying her body at the gym so she can sleep:

    In the months that follow I find myself struggling to find equilibrium and giving in to tears that rise as naturally as breath. I am unmoored by grief that seems rawer than it did five years ago. For so long, hope and fear had battled for supremacy in my thoughts while adrenalin and fatigue co-piloted my body. Now, when all of the above have decamped, I am left alone with myself, a redundant shell, and even less of a mother than ever for my daughter, the child left behind.
    Born just as the catastrophe struck, she has no experience of parenting that is more than cursory, or of what life might be like in a home that is not a fortified asylum. I did this not just for myself but for her - to try to give her normality and a mother who once in a while might be able to come when she called.


    Exercise becomes my solace and I spend hours in the gym each week or pounding the pavement, hoping to buy some private peace - or at least a straight stretch of sleep. After six years of half-slumber, straining to hear the manic giggle, the shout or the cry that would herald a 2am start to the day, it’s not so easy to just roll over and wake up at seven. And there’s grim satisfaction to be had from forcing the body to work beyond its normal limits; counting the reps and increasing the time the flesh can withstand the insult. My pleasure in the pain does not go unremarked, even in this space so scented with the sweat from oversized arms and washboard stomachs. “You’re like a machine. What do you think about?” is an enquiry I have heard more than once. The answer is “exactly nothing”, and that’s the reason I can be found here every other day. I need to keep a lid on my own emotions while I help my daughter to process hers, to understand that we are still a family, a small, fractured family, not the woman and child we now appear to outsiders to be.

    The Weekend Australian Magazine, November 25-26, 2011.

    Nobody should be forced to such a decision, should they. 

     We need to do better here in Australia. We need to do it now.